Network
The ESGLD members are closely interconnected with other international societies related to lysosomal diseases:
MetabERN Lysosomal Storage Disorders Core Network: Part of the European Reference Networks, this network connects European healthcare providers with expertise in LSDs for clinical guidance, research, training, and patient empowerment.
EURORDIS – Rare Diseases Europe – A major European patient-driven alliance of rare disease groups, including many LSD-related patient organizations; supports policy, advocacy, and networking across >60 countries.
Society for the Study of Inborn Errors of Metabolism (SSIEM) – International society promoting research, clinical care, and education in inherited metabolic disorders, including lysosomal diseases.
Society for Inherited Metabolic Disorders (SIMD) – U.S. society dedicated to advancing knowledge and clinical care in inborn errors of metabolism (including lysosomal diseases).
WORLDSymposium™ – Annual international scientific meeting focused on lysosomal diseases research and therapy.
WORLDSymposium ™ – A major annual international research conference on lysosomal diseases (attended by clinicians, researchers, and patient advocates worldwide).
Gaucher Gesellschaft Deutschland e. V. (Germany) German Gaucher disease patient support organization
Gesellschaft für Mukopolysaccharidose e. V. (MPS Society, Germany)
Pompe Deutschland e. V. (Pompe disease support, Germany)
Morbus Fabry Selbsthilfegruppe e. V. (Fabry support, Germany)
MPS Society UK (serving UK and LSD community)