A Pompe Preceptorship will be hosted by Mark Holland (Metabolic Unit, Manchester) on Thursday 3rd & Friday 4th October 2019.

The details of the event are listed below:

Venue: Mercure Hotel, Manchester Piccadilly, M139WU
Audience: All medical staff
Funding: Places are limited and funding for this event will be available

Topics to be included:

  • Biochemistry & Genetics of Pompe Disease
  • Infantile & Adult Pompe Disease
  • Metabolic Myopathy
  • Benefits of exercise in Pompe Disease
  • Nutrition in Pompe Disease
  • Respiratory function
  • Palliative care
  • Research in Pompe
  • Future of Gene Therapy
  • AGSD – Patient Society
  • Patient’s Experience of living with the condition
  • Case Studies.

Pompe Preceptorship agenda 2019


For further information and to request a registration form please contact: Karen Wynne, Mark Holland Metabolic Unit, Email: karen.wynne@srft.nhs.uk
Telephone: 0161 206 4365

Supported by an Educational grant, from Sanofi Genzyme, This is an independent meeting and Sanofi Genzyme has had no input into the programme or speakers.